Portal de Cehegin
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The Association Chromo22 installed this morning in the square Cehegín Alpargatero a stand to present Neurofibromatosis type 2, a disease of rare denominas that affects one in 40,000 people, and there are very few cases diagnosed in Spain.
Maria Jose Teruel, Cehegín neighbor and affected by this disease, explained that May is the month in which the Chromo22 Association, consisting of just 20 people across Spain, "is carrying out different activities to become visible in society and request more attention, support and resources for biomedical research and drug therapies. "
Neurofibromatosis type 2 (NF2) is a genetic disorder that causes a mutation on chromosome 22 which favors the development of benign tumors throughout the central nervous system (brain, spinal cord and neuronal cells in general).
Most affected show the first symptoms during adolescence or around 20 years.
In addition to providing information and sell different products to raise money, the stand María José Teruel has announced that on May 30 at 19:00 will stage the play children's theater 'Prince enratonado' Adolfo Suarez in the Cultural Center .
The money raised from the tickets will go to research into this disease.
Source: Ayuntamiento de Cehegín
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