Portal de Cehegin
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Councillor for Sports, Antonio Marín, President of Mountain Bike Club's Simao, Antonio de Maya, and the delegate of the Association of Rare Disease Genes in D'Northwest Region, Pascual Donate, presented this morning I March for Rare Diseases, to be held at the site of the Sierra de Burete Cehegín August 31.
"This march bicycle, after several years without place, recovers a united purpose, as part of the registration, which is 15 euros for adults and $ 9 for children under 14 years will go to the association D 'Genes for projects and activities carried out, "said the mayor of Sports.
The test will have 43 kilometers of mountain bike, another part 10 kilometers of trails and a 'Pequemarcha' about 2 miles for children to be held by the Association Adinor, collaborating with the event.
Entries can only be made through the web www.conchipmurcia.es
The Club President Simao explained that the difficulty level of the test is low, running well marked paths and forest roads.
Meanwhile, Pascual Donate explained that the association D'Genes was founded in 2008 by parents, relatives and professionals, "intended to be the voice of all those affected by rare diseases."
When a person is diagnosed with one of these diseases, explained Donate, the association offers information, advice and guidance, in addition to physical therapy, speech therapy, psychologist, etc..
"Thanks to the solidarity of the people and events like this taking up resources going to carry out our projects, especially with children, who are the most affected," D'Genes delegate has finished in the Northwest Region.
Source: Ayuntamiento de Cehegín
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