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On Sunday April 27 was held at the House of Culture of Cehegín a Charity Gala for Rare Diseases organized by ANAC (National Association of Friends of Arnold Chiari), in collaboration with the local municipality and D'Genes, Association Rare Disease of Totana.

The event, which began at 19.00, included various musical performances, children's storytelling and the intervention of several affected by rare diseases.

More than a revenue end, the gala was the main intention of raising awareness and visibility to these diseases, publicize their general characteristics and problems they face and provide information about them.

Source: D´Genes