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Mary Joseph, coordinator of the Association D'Genes in Cehegín Murcia, held a lecture at the Institute of Cehegín Alquipir.
70 students of first and second bachelor's Cehegín Alquipir Institute, attended the talk expectantly at Maria Joseph, coordinator of D'Genes in Cehegín, gave last week.
María José explained what is the Spanish Federation for Rare Diseases, and the slogan "For equal opportunities for people with rare diseases, also spoke about the Association D'Genes, why it arose and the services it plays improve the quality of life of more than 85,000 affected by rare diseases in the Region of Murcia.
Finally, the coordinator spoke about his personal experience with a rare disease such as neurofibromatosis type 2.
Maria José said, "My goal was to show them that people with rare diseases, we are still people who have feelings.
To know and learn to appreciate life. "
The president of the Association D'Genes, Naca Eulalia Pérez de Tudela, would like to thank the important work of Maria José and visibility to the needs of those affected by rare diseases and to bring patients to the services offered by the Association.
Source: D’Genes
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